From Survivor to Changemaker: A New Year, A Renewed Purpose
As we step into a brand-new year, I’m excited to reconnect with you all and set the tone for what lies ahead. Last year, I’ll admit, I wasn’t as consistent with posting as I had hoped to be. Life has a way of getting busy, doesn’t it? But as I reflect on my journey, I’m reminded of why I’m here and how my experiences have equipped me to help you live your best life—especially as an entrepreneur navigating challenges, growth, and purpose.
A life shaped by sickle cell disease.
My journey began in Toronto, where I was born to Nigerian immigrant parents. Diagnosed with sickle cell disease at the age of two, I quickly became familiar with the relentless pain and health complications that accompany this condition. Sickle cell disease, a genetic blood disorder, brings intense physical and emotional challenges, particularly for African, Black, and Caribbean communities where it is most prevalent.
For years, my life revolved around hospital visits, medical treatments, and navigating a system that often felt unprepared to understand my unique needs as a young Black woman. Despite the hardships, I’m incredibly grateful for my family and extended support system. My mother, in particular, was instrumental in teaching me how to advocate for myself in spaces that weren’t always welcoming.
A new chapter: a second chance at life.
At the age of 18, I underwent a bone marrow transplant—a treatment that successfully cured me of sickle cell disease. This was a turning point I never thought I’d experience. I went from preparing myself for a life defined by illness to embracing one filled with possibility. September marked eight years since my transplant, and I am still amazed by the opportunities I’ve been given to live a life free of sickle cell’s grip.
Finding my purpose.
While my body healed, my mind and heart turned toward advocacy. Living with sickle cell had taught me about the stigma that exists both within Black communities and the broader healthcare system. These experiences fueled a deep desire to create change for others facing similar struggles.
Initially, I thought my path would involve medicine. I planned to become a hematologist and provide care for people like me. However, during my pre-med journey, I realized that my true calling lay in community work and advocacy. The decision wasn’t easy, but I knew that my impact would be greater if I focused on addressing systemic issues and providing direct support through nonprofit work.
NotJustYou: a vision for support and advocacy.
In 2018, I founded NotJustYou, an organization dedicated to supporting individuals and families affected by sickle cell disease. The name itself is a reminder to anyone battling this condition that they are not alone. Over the past six years, we have grown into one of the most trusted sickle cell organizations in Western Canada. Our programming is designed to be accessible across the country, including virtual peer support groups, resource distribution to hospitals, and community-building events.
Breaking stigmas and building community.
One of the pillars of our work is addressing the stigma surrounding sickle cell disease in African, Black, and Caribbean communities. These stigmas often prevent people from seeking care or support. By creating safe spaces for conversations and offering culturally relevant programming, we’ve been able to foster a sense of belonging and empowerment within the community.
Our approach is unique because it goes beyond traditional healthcare advocacy. We recognize the importance of joy and connection in healing, which is why we host events like brunches, barbecues, and networking meetups. These gatherings bring people together—whether or not they’re directly impacted by sickle cell—to create awareness and build solidarity.
Advocacy with a cultural lens.
As a young Black woman, I bring a cultural lens to my work that’s often missing in healthcare advocacy spaces. This perspective has been critical in designing programs that resonate with our community. For example, we recognize that engagement strategies that work for mainstream audiences often fall flat in Black communities. By incorporating cultural understanding into our outreach, we’ve been able to connect with people in meaningful ways.
Why I’m here for you.
Through my journey, I’ve learned invaluable lessons about resilience, advocacy, and building something meaningful from the ground up. These lessons aren’t just about surviving; they’re about thriving. As entrepreneurs, we all face challenges—sometimes it’s stigma, other times it’s self-doubt or systemic barriers—but what matters is how we rise above them.
This year, I’m here to ensure you’re equipped to make the most out of your life and entrepreneurial journey. Whether it’s through sharing strategies for effective advocacy, tips for connecting with your community, or insights into balancing purpose and profit, my goal is to be your go-to resource for living a life of impact and intention.
Looking ahead.
2025 is a fresh start, and I’m more determined than ever to share, connect, and help you grow. If my story has taught me anything, it’s that transformation is possible. Whether you’re battling an illness, facing societal stigma, or striving to create change in your community, know that every step forward is a step toward a better future.
Here’s to a year of growth, purpose, and achieving the extraordinary. Let’s do this together!
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